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Work in Progress, Worklife, Workplace, TIME

Cancer rots. But try working with cancer

hiroefall07.jpg
My mom, looking pretty damn good, if I may say so

My mom has cancer. She's had some type of cancer for over 10 years now; the latest was diagnosed at Stage 4 about two years ago. Since then, her body has acted like a fireworks factory: stuff just keeps exploding. But she somehow struggles on.

Living with cancer sucks. But you know what's worse? Working with cancer. Read this moving story in the Wall Street Journal today:

Andrew Flaton survived a brain tumor as a child, but he still suffers from the effects of his cancer treatments. One of his most challenging tasks: holding down a job. He was left almost entirely deaf after undergoing chemotherapy. He can't work more than four hours a day without feeling exhausted, and he often suffers from panic attacks, which he struggles to keep under control. The 25-year-old Oakville, Mo., resident earns less than $700 a month and lives with his grandparents, and the longest period he has spent in one job -- doing part-time filing work for an anesthesiologist -- is two years.

My boss, a respected and longtime editor here, had a nasty form of cancer a few years back. He worked throughout his illness and his treatment. I guess it didn't occur to me until I read this Journal piece that my editor is lucky: he was already an established professional by the time his illness hit, in a workplace that wanted to stick by him.

Imagine surviving the most dreaded of childhood diseases only to discover you can't attain many of your dreams and goals anyway.

Over my recent visit to tend to my mom in Japan, I picked up a novel that my sister had left there. It was My Sister's Keeper, by Jodi Picoult, and it's about a family who struggles with one daughter's cancer.

I suppose it had particular resonance for my sister, who is a pediatric oncology nurse; for many years before she left to have four kids of her own, she nursed children with cancer. Me, I read it as a parent, trying to fathom the choices these people had to make to care for their children. It made me wonder: if, gods forfend, my own progeny suffered such a fate, would I do what they did to save them? And at what cost?

...at the cost of a fulfilling career for the patient, for one. As a parent, you think that's a small price to pay for the survival of your child. But if I was the child—if I had battled childhood cancer and won, and then discovered I would never hold down a job as a journalist—I think the victory would feel bittersweet.

Sorry for the downer post. It's a contemplative day. Let's end it on a kumbaya note and give thanks for our own relative health. Anyone else out there working through chronic and debilitating illness?

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Reader Comments (6)

Jeff:

God, I blanched reading your post Lisa. That drained feeling along my jawlines, the wrenching constriction in my stomach--generally a jolt out of standard self-absorption. 1/2 empathy and 1/2 depression at my own and my loved ones' mortality. Without grueling commutes, blah cube-jobs and ever-present thoughts of death, how would we appreciate the lighter moments or sense happiness when it deigns to flirt with us. Easier for me to say with two healthy albeit aged parents.

Nothing to add...just wanted to say what a great picture that is. Definitely frame it and put it on display.

LKW:

Okaasan wa genki desu ne!

Lulu:

I didn't read the whole WSJ article, but I'm curious about schooling for those with these conditions. If they were able to get through school, they should be able to work with accomodations--the accomodations being the crux of the matter, I suppose.

People with chronic and debilitating illness' can sometimes qualify for assistance from the Vocational Rehabilitation Department in their State. As per the Wall Street Journal article the American With Disablity Act protects them if the employer has 15 employees or more. It is important that the patients with a chronic and deibilitating illness be informed of all options available to them as soon as they start looking for employment. However, most people are not aware of their rights and need to be better informed by their physician, school, and other professionals of the assistance available to them in the community.

Mary:

Yes, ADA protects them....maybe. If you have three people that are "equally" qualified and one of them has visible signs of past medical issues, chances are very good that one of the other two will be hired. My son is a 3 time survivor of childhood leukemia and now a survivor of a carcinoma. He has applied over and over again for jobs. It is rare that he gets a call back. It's quite frustrating. And there is no way to prove that it is due to medical disability. These have been simple part time jobs while in college. I have deep concerns about him finding a "real" job after he finishes college and about the ability to find and maintain health insurance.

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About Work In Progress

Lisa Takeuchi Cullen
Nina Subin

Lisa Takeuchi Cullen is a staff writer for TIME. She blogs about work. Why? Because TV was taken. Think of her as the grumpy colleague ranting by the water cooler.
More about the Author

Email her here:
lisa_cullen at timemagazine.com

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